When I read the article above it stirred up so many memories and feelings of frustration that I felt compelled to reblog it here.
I don’t have a daughter, but I am a daughter and I believe I am probably somewhere on the autism spectrum. When I was a young child (50+ years ago) nothing was known about Aspergers syndrome and autism was the result of “frigid mothers”. Kids didn’t have “behavioural disorders” they were just plain naughty and undisciplined – everything was blamed on bad parenting – and people never took their shy, awkward, socially clueless daughters to be assessed by a psychologist. So, I bumbled through life as best I could – as everyone does – but always wondering how other people “knew stuff” that I didn’t but was somehow supposed to know, and why I was often told by my mother in her angry/frustrated/scolding tone, “You’re old enough to have more sense!”
When trying to get a diagnosis for my 3rd son (then aged 2 years, now almost 21) I told our paediatrician that I was worried my boy might have Aspergers Syndrome, but my ideas were dismissed by the doctor who told me it was parenting issues. I argued that as I already had 2 older sons I was quite capable of knowing that there was something different about my 3rd son, but still I was not taken seriously. Two years later he started preschool and the teachers noticed his differences as well and cautiously took me aside and very nervously explained what they had observed about his atypical behaviour. They were expecting me to be upset about this news but were surprised when I was PLEASED with what they told me. FINALLY my concerns about him were validated and proper assessment was begun via a paediatric centre recommended by the preschool which eventually led to a diagnosis by a psychologist with the Autism Society of NSW (now ASPECT). Throughout this time I was doing a lot of reading about autism and Aspergers syndrome, including reading first hand accounts by adults with high functioning autism, or Aspergers Syndrome. In many cases it was like reading about my own life experiences and it was then that I finally realised (at age 38) that I too was most likely an Aspie! It explained so much about why certain things in my life had unfolded as they had. It also gave me new insight into the rest of my family, with some individuals standing out as also being somewhere on the spectrum, especially as they had children with certain ‘quirky’ behaviour, some being diagnosed with ADHD. We were always a delightfully weird and eccentric bunch, each with our own challenges, and finally I knew why.
Originally posted on seventhvoice:
Figures derived from a national survey on the experiences of parents with young adults on the Autism Spectrum conducted in Australia last year indicate that out of the 203 parents who responded to the survey only 44 reported having daughters diagnosed as being on the Autism Spectrum.
This stands in stark contrast to the 152 parents who reported having sons diagnosed on the Spectrum.
For this reason the information provided by parents with daughters on the Autism Spectrum is considered to offer a previously unexamined snap shot of the previously unrecognized parental experiences that are unique to parents of daughters on the Autism Spectrum.
Mothers of daughters within this survey reported that they had to struggle with professionals who were either unaware, ill-equipped or in some instances entirely unprepared to diagnose girls with High Functioning…
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